So-called long COVID can be listed as a cause of death even if a deceased person had not tested positive for COVID-19 for months or even years, the U.S. Centers for Disease Control and Prevention (CDC) said in a new update.
“When completing the death certificate, certifiers should carefully review and consider the decedent’s medical history and records, laboratory test results, and autopsy report, if one is available. For decedents who had a previous SARS-CoV-2 infection and were diagnosed with a post-COVID-19 condition, the certifier may consider the possibility that the death was due to long-term complications of COVID-19, even if the original infection occurred months or years before death,” the CDC said in updated guidance for certifying deaths due to COVID-19.
“Long COVID,” or post-acute sequelae of COVID-19, refers to long-term problems believed to stem from COVID-19.
Emerging evidence suggests that SARS-CoV-2, the virus that causes COVID-19, “can have lasting effects on nearly every organ and organ system of the body weeks, months, and potentially years after infection,” the CDC says in its update.
The agency pointed to several papers. One, published in its quasi-journal, found that some people reported problems two months after testing positive for COVID-19. Two others were round-ups of existing literature on “long COVID.” The CDC also referenced a U.S. National Institutes of Health webpage on the subject.
In one of four hypothetical scenarios presented by the agency, a healthy 48-year-old suffered respiratory problems, fatigue, and brain fog after COVID-19. The man gradually improved, but some symptoms persisted, and imaging revealed heart inflammation.
Several months later, the man died in the hospital after heart failure.
The certificate listed heart failure; cardiomyopathy, a heart muscle disease; myocarditis, the heart inflammation; and post-acute sequelae of COVID-19. The chain of events started with the latter.
Dr. Thomas Gilson, the chief medical examiner in Cuyahoga County, Ohio, told The Epoch Times that the scenario was reasonable.
“That’s kind of the crux of the matter—when I’m certifying a death is, can I really trace things back logically to the COVID infection and then the consequences of the infection,” Gilson said.
In some cases in the real world, examiners would not list the post-acute sequelae, he said.
“The trouble with this is how accurate are the death certifications and COVID. This is a longer standing problem than COVID that sometimes, we don’t always … see people certifying deaths going all the way back to the real initial cause,” Gilson said. “The longer I think there is between an inciting event and a person passing away, the more likely it is that sometimes those things don’t make it onto the death certificate.”
Twenty to thirty percent of death certificates have “issues with completeness,” according to the CDC. In 2018, more than a third of death certificates had an “unsuitable” or “ill-defined” underlying cause of death, CDC researchers have said.
The CDC itself has acknowledged it overcounts COVID-19 hospitalizations, including hospitalizations where a patient tests positive for COVID-19 but is hospitalized for unrelated reasons.
On deaths, the CDC has claimed its numbers are accurate.
The death count only includes deaths “in which COVID-19 played a meaningful role,” the CDC said in a recent statement.
Some U.S. deaths labeled as from COVID-19, though, are due to unrelated causes such as car accidents and gunshots. The CDC says that a death can be from COVID-19 even if a person didn’t test positive, provided “circumstances are compelling within a reasonable degree of certainty.” And researchers, including a Danish group, have found that COVID-19 deaths include deaths in which the deceased coincidentally had COVID-19.
“Incidental conditions or findings are not supposed to be reported on death certificates,” a CDC spokesperson previously told The Epoch Times.
On the other hand, some deaths caused by COVID-19 may have been attributed to other causes because of a lack of a COVID-19 test or diagnosis.
The CDC has multiple times during the pandemic removed deaths initially attributed to COVID-19, attributing the actions to data issues.
Deaths Attributed to ‘Long COVID’
The CDC has already attributed thousands of deaths to so-called long COVID, but the new guidance may lead to an increase in of post-acute sequelae of COVID-19 being listed on the death certificate.
“There may be cases where somebody has (or believes they have) long COVID. They go on for years and suddenly they die of something. And then the doctor may decide to call this a ‘COVID death.’ That could raise some issues, certainly,” Daniel Halperin, an epidemiologist at the University of North Carolina’s Gillings School of Global Public Health, told The Epoch Times.
“Now, when a clinician genuinely feels the person who’s got these ongoing series of symptoms started with a COVID illness, and that person eventually does die, well yes it could make sense to call that a death from COVID. But, statistically speaking, how many cases are there like that?” he added.
Halperin, who wrote in January that “misclassified hospitalizations obviously suggest there have also been miscategorized deaths,” said it’ll be interesting to see whether the updated guidance will cause the official death count to go up significantly.
The updated guidance says that certifiers should only include post-acute sequelae of COVID-19 on a certificate if it caused or contributed to a death.
Gilson, the Ohio medical examiner, said that for deaths from a car accident or another unrelated cause, the sequelae should not be listed.
“Long COVID doesn’t belong on that death certificate,” he said. “It doesn’t contribute to the person dying; they died from their injuries in the car accident. I would leave it off. It may underestimate how well we track long COVID as a problem in the community but it wouldn’t lead to an overcounting of the death unless the death certificate was filled out improperly.”
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